Welcome To The MSUD Family Support Group
Together, We’re Stronger.
The MSUD Family Support Group is an international nonprofit organization dedicated to providing support, education, and advocacy for individuals and families affected by Maple Syrup Urine Disease (MSUD). Whether you’re newly diagnosed, living with MSUD, or caring for a loved one, you are not alone.
Our Mission
We empower the MSUD community through:
· Support: Offering resources, virtual meetups, and peer connection to help families navigate daily life with MSUD.
· Education: Sharing up-to-date information on treatment, nutrition, and research to support informed decision-making.
· Advocacy: Championing access to medical nutrition, advancing research, and raising awareness to improve the lives of those with MSUD.

Get Involved
Join a growing global network of patients, caregivers, clinicians, and researchers who are working to improve outcomes and build community.
- Connect through our virtual meetups
- Stay updated with our newsletters.
- Support our patient registry and research initiatives.
- Attend educational webinars and biennial symposiums.
From Diagnosis to Hope
MSUD is a rare, life-threatening metabolic disorder that affects approximately 1 in 185,000 births worldwide. But with early diagnosis, specialized care, and a strong support network, individuals with MSUD can thrive.
Our international community is filled with resilience, love, and the determination to create a brighter future. Whether you need guidance, want to give back, or are searching for answers, we’re here for you.
Join our community.
Donate to support our mission.
Learn more about MSUD.
Support MSUD Research and Other Services
We are almost entirely funded by donations. We rely on these donations to fund our newsletters, biennial symposium, our research program and other activities. We sincerely appreciate any donations you may choose to make.
Donate
Our Sponsors
These sponsors are proud to support the MSUD community, helping to drive awareness, advocacy, and support for those living with Maple Syrup Urine Disease.